Harry we would just like to say "you are a star!"
Well it has been an interesting week at the Resort. We were admitted on Monday for our final week of Methotrexate before surgery and when we arrived our name was down for one of the isolation rooms. Typical, Harry had a bit of a cold and I had been telling him not to sniff or cough as we would be put in isolation and we were there anyway!! They did then say we could possibly move into Room 7 but as it was full and there is no where for parents to sleep, I suggested we should stay in our own room and he would still be free to walk around the place.
So we think we are in here because the shared room is full, but I find out the nurses think we are in here because there is something in his pooh!! Which i find quite amazing considering he hasn't even had a pooh yet. The week is spent with people thinking we are in isolation but we are not really, however after being in hospital for a few days his cold is far worse and after going to school and needing to use a lot of tissues. The teacher tells the nurse and the next thing he is having the tube stuck up his nose to test his snot!! Sorry if I am being a bit technical, but really think it is best to use laymans terms here.
So far the results have all come back with nothing which is great, but we have another issue and this is his knees.
2 weeks ago this Sunday, Harry fell over and cut his knees quite badly. These are now an issue for the surgeons and could alter what happens next week. Unfortunately when we came into the hospital last week it was mentioned but no real attention was paid to it and now it is becoming an issue. When Harrys oncologist, Dr Maryanne came round today Harry was very determined to tell them that if someone had done something about this last week then it would have been much better, but no-one listened. I have to say that he is completely right, but at this moment in time there is nothing we can do about it and we have to make the best decision now for Harry.
On a positive note the MRI scan showed a decrease in the tumour and the tissue around the bone which is great, but the really unfortunate part is that until they remove the bone and shoulder from his arm we can't tell exactly how much of the cancer has been killed!
Harry is getting anxious about the surgery and I am sure this is only going to intensify over the next week. I can't imagine what is going through his head as I want to cry every time I think about it, and really just want everything to go to plan next week.
Darling Harry, I love you and Ellie so much and would do anything to take this away from you but I can't. It is just not fair and this really is any parents biggest nightmare. We are so lucky that you have handled the chemo so well so far and have been able to go to school and live as normal a life as is possible when you are not in the hospital, and just need you to continue being brave throughout the rest of the treatment but more importantly the surgery. I will also be brave and remember that even when you are angry or sad and being horrible to me it is not because you don't love me as I know you do, but because you always attack those closest to you and those you know that will always be there, so in a way I should take it as a compliment. We will all be here to help you through this next stage of your treatment, and love you to pieces.
PS Harry being a lawyer isn't such a bad thing!
PPS To all the other wonderful children and parents that we have met in PMH, stay strong and keep laughing! As they say laughter is the best medicine!
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