Our brave boy harry!

Our brave boy harry!
Love you lots.

Tuesday, September 21, 2010

Day 11 after surgery


Chloe, Fletcher, Denyse and Harry

Chloe, Fletcher and Harry


How bored is Harry making mountains out of the wee bottles!

Stocking up for the night!
6pm on Tuesday afternoon and we are waiting for Dr Savundra to turn up and say we can go home tomorrow. The nurses are all convinced that it is time we went as Harry zooms up the corridor and is trying to knee cap everyone.
We had a long day yesterday as Harry is getting fed up of being in here and is sick of people telling him what to do. We had a chat with Rebecca on Skype and saw Sofya who is gorgeous - just like her Mum. Also got an 'e' mail off cousin Tom and he is thinking about coming to Perth on October 1st which means he will be here for his birthday.
Cousin Billy has also been in with Salty the dog. Think he is just trying to find a single Nurse and I have seen one who seems quite keen.... so watch this space.
Had a good night last night and Harry is no longer taking any painkillers. The nurse was trying to wake him up last night to give him his pandadol, and for those who have tried to wake Harry up whilst asleep, we know this is no easy task, and this morning I heard her telling the morning staff that maybe we should stop the tablets during the night. They then asked him if he wanted to keep taking the painkillers or if he wanted to have them when needed and he said he would have them when needed. So far he hasn't had any today.
Caught up with Donna off 3B and had a coffee. Then Gillian bought me in a coffee from outside which was lovely. We then saw Billy and Salty, had a bit of a walk round the hospital. Antibiotics every now and then a broviac dressing change and then we had more visitors. Denyse, Fletcher and Chloe came in which really brightened Harry up. We took them down to 3B to show them where we normally live and also saw Ann and David whilst down there.
I also saw one of the oncologists whilst I was down there and we are going to catch up with her once they have the pathology results back. I thought that we had another 7 months of chemo after this surgery as a minimum but today i am feeling over the moon as we could be finished by the end of February. I know that is another 5 months of chemo but I am so excited I could do a dance of joy. We need 95% and more of the cancer in the tumour to have been killed by the chemo which we did before surgery and if this is the case we would be classed as a good responder. If not we would be classed as a bad responder. Depending on whether Harry has responded well or not we will get randomised onto one of 2 options. Both have the option of being finished by the end of February. The good also has a Peg or pleg thingy which is something that you do weekly and goes on for 2 years - I think, and the bad has chemo which is similar to what we had before with an added chemo and goes for nearly 40 weeks. Having said all that we could pull out of the study, but for now we just have to keep the positive thoughts coming and pray that we get a good response to the chemo that has already been done.
Well still waiting for the plastics man and he is 25 minutes late!! Hope he is turning up or he might miss us as we will be gone tomorrow.
Harry is now in the hall and asking the plastics registrar when the surgeon is turning up as we have places to be tomorrow. Gotto love that boy!

1 comment:

  1. Dear Vic,
    You assume people's lives are going along as normal & then you discover that their world has tipped on it's axis. Our thoughts are with you all. Stay strong and thank you for reminding me to hug my kids especially when they are driving me mad.
    Love
    Kate O'Leary

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