Our brave boy harry!

Our brave boy harry!
Love you lots.

Wednesday, March 2, 2011

Hummer Hummer

Nearly through another week - where does the time go? Saturday afternoon we went to Bradens party at point walter and took the kayak down there for the kids to play on. We had all chipped in and bought Braden an ipod which was great, but Harry told me he knew as some of the kids had mentioned it to him. So I got a mug and plate making kit and wrapped this up with the ipod inside. Braden was fantastic, 'wow' he says ' I can paint a picture of a bunny', although this is harrys version I still think he said 'I can paint a picture of bali'. Afterwards Harry and Tyler were saying to him about it and he said 'what did you want me to say, 'thanks but I wanted an ipod!' Well done Braden your politeness shone through, and you got what you wanted in the end anyway!
Then on Sunday we went to the cottesloe civic centre for breakfast as Nanny Pat and Aunty Phil are leaving this week. Harry has been doing really well but you could see by the end of last week that he was absolutely shattered. Trying to get him back into a routine and a pattern of school work and down time is proving to be difficult but I am sure we will get there in the end. I popped over to school yesterday as Ellie had forgotten something, and she dragged me over to see a drawing that was on the school wall. Someone had decided to draw a willy on the wall, and Ellie thought this was quite funny. The part that she found particularly funny was that one of the teachers had told her it was a banana and two oranges. She looked at me and said 'seriously mum have you ever seen a banana like that. Of course it's not fruit!' It was all I could do to walk away and not laugh!
Today (wednesday 2nd march) Harry had his CT scan. We won't know the results till his review which is in 2 weeks. Friday is the GFR and Bone Scan. The next week we have the hearing test and the heart test! So keeping everything crossed for good results.
The surprise was now here! Alan Nelson from Dreamhost Limousines has donated a hummer ride to the PMH Foundation every month and they had given one of the rides to Harry. He invited some of his friends and then Ellie invited one of her friends and today at 3.30 the Limo arrived.
The kids were all so excited and we drove up to Kings Park and then back down to Point walter. PMH Foundation met us up at Kings Park and gave all the kids a stitches teddybear and then we headed back down the freeway and to point walter. Alan Nelson was a really lovely and genuine man. Harry connected his ipod and then we played some of the music on Harrys ipod. I hate to laugh, a load of 10 year olds, with a couple of 6 year olds singing S & M by Rihanna at the top of their voice! Good job they don't know what they are singing - well I hope they don't anyway. When we got to point walter the kids went in the river and had a swim and then we got fish and chips for everyone. All in all they had a great day, and one they will hopefully remember for a while!

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